petitie ivm de door CDC gebruikte richtlijn
Geplaatst: 15 aug 2010, 12:33
Deze richtlijn is zeer nadelig voor iedereen die werkelijk ME/cvs heeft. Alle vermoeiden, depressieven et cetera zitten in die groep. In deze richtlijnen zijn bv niet opgenomen neurologische klachten, cognitieve problemen et cetera. Helemaal onderaan kun je tekenen, daarna wordt je zoals bij elke petitie naar een betaalpagina geleid, maar betalen is niet nodig.
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A petition initiated by Tom Kindlon to prevent the CDC from using the
empirical/Reeves 2005 definition to define CFS is attached.
Goal: 2,500 signatures to present to the CFSAC meeting this fall 2010.
XMRV Global Action would urge you to add your name to the petition and
forward this to concerned friends and forums/lists.
http://www.ipetitions.com/petition/empi ... _research/
"We call on the Centers for Disease Control and Prevention (CDC) to stop
using the "empirical" definition[1] (also known as the Reeves 2005
definition) to define Chronic Fatigue Syndrome (CFS) patients in CFS
research. The CDC claim it is simply a way of operationalizing the Fukuda
(1994) definition[2]. However the prevalence rates suggest otherwise: the
"empirical" definition gives a prevalence rate of 2.54% of the adult
population[3] compared to 0.235% (95% confidence interval, 0.142%-0.327%)
and 0.422% (95% confidence interval, 0.29%-0.56%) when the Fukuda definition
was used in previous population studies in the US[4,5]. The definition lacks
specificity. For example, one research study[6] found that 38% of those with
a diagnosis of a Major Depressive Disorder were misclassified as having CFS
using the empirical/Reeves definition."
================================================
A petition initiated by Tom Kindlon to prevent the CDC from using the
empirical/Reeves 2005 definition to define CFS is attached.
Goal: 2,500 signatures to present to the CFSAC meeting this fall 2010.
XMRV Global Action would urge you to add your name to the petition and
forward this to concerned friends and forums/lists.
http://www.ipetitions.com/petition/empi ... _research/
"We call on the Centers for Disease Control and Prevention (CDC) to stop
using the "empirical" definition[1] (also known as the Reeves 2005
definition) to define Chronic Fatigue Syndrome (CFS) patients in CFS
research. The CDC claim it is simply a way of operationalizing the Fukuda
(1994) definition[2]. However the prevalence rates suggest otherwise: the
"empirical" definition gives a prevalence rate of 2.54% of the adult
population[3] compared to 0.235% (95% confidence interval, 0.142%-0.327%)
and 0.422% (95% confidence interval, 0.29%-0.56%) when the Fukuda definition
was used in previous population studies in the US[4,5]. The definition lacks
specificity. For example, one research study[6] found that 38% of those with
a diagnosis of a Major Depressive Disorder were misclassified as having CFS
using the empirical/Reeves definition."
