M.E. (MYALGIC ENCEPHALOMYELITIS) BASIC INFORMATION
Geplaatst: 16 jul 2008, 19:15
M.E. (MYALGIC ENCEPHALOMYELITIS) BASIC INFORMATION
ME Action (UK). April 2008.
“…there are now over 4,000 published studies that show underlying biomedical
abnormalities in patients with this illness. It’s not an illness that people
can simply imagine that they have and it’s not a psychological illness. In
my view, that debate, which has waged for 20 years, should now be over”.
[Professor Anthony Komaroff, Harvard Medical School: Speaking at the USA
Government CDC (Centers for Disease Control and Prevention) press conference
on 3 November 2006. Also see endnote 1 below]
www.cdc.gov/od/oc/media/transcripts/t061103.htm
CONTENTS:
1. What ME is and What it is Not.
2. ME Recovery & Early Death Rates.
3. Internationally Respected ME Guidelines & Expert Comment.
4. Disinformation, Controversy and Vested Interests.
5. Concerns About UK NICE / NHS Guidelines and the Evidence Base.
6. The Gibson Parliamentary Group Findings.
7. Biomedical Evidence Summaries & Key Scientific Papers / Books.
8. Websites / Updates.
9. Endnotes.
1. WHAT ME IS AND WHAT IT IS NOT:
Myalgic Encephalomyelitis or M.E. (myalgic= muscle-pain, encephalo= brain,
myelitis= spinal-cord, encephalomyelitis= inflammation of brain &
spinal-cord) is a long-term organic/biomedical illness and is NOT the same
thing as 'Chronic Fatigue', short-term post viral syndrome or 'myalgic
encephalopathy'[2] and it is NOT a psychiatric or behavioral illness. ME has
been in the medical literature since the 1930s and classed as a physical
disease by the WHO (World Health Organisation) International Classification
of Diseases (ICD) since 1969 - currently listed at WHO ICD-10-G93.3 as a
Multi-System organic/physical NEUROLOGICAL Disorder with similarities to
Multiple-Sclerosis and Post-Polio-Syndrome. Documented clinical/research
abnormalities (see section 7 below) include: immune system/infectious;
cardiovascular, endocrine and digestive systems; muscle, cellular,
mitochondrial and genetic function and integrity; oxidative stress; central
nervous system - including brain and spinal cord; end organs. For
symptoms/signs and diagnostic information and discussion see section 3
below.
To complicate matters, the term ‘Chronic Fatigue Syndrome’ has been much
abused by vested interests trying to re-label biomedical WHO-recognized
ME/CFS/PVFS as a psychiatric disorder doing so allows insurance companies
and benefits agencies to potentially save billions of £/$ across the globe.
This is hugely impacting upon public as well as private health & welfare
policy - causing a recent UK Parliamentary inquiry group to caution:
“Given the vested interest private medical insurance companies have in
ensuring CFS/ME remain classified as a psychosocial illness there is blatant
conflict of interest here. The Group find this to be an area for serious
concern and recommends a full investigation of this possibility by the
appropriate standards body.”
[Page 30 of the joint Commons/Lords Gibson Parliamentary Inquiry Group
(GSRME) Report see section 6 below].
www.erythos.com/gibsonenquiry/index.html
Thus, many biomedical ME campaigners/clinicians if they use the misleading
term ‘Chronic Fatigue Syndrome/CFS’ at all, preface it with ‘ICD’: to read
‘ICD- Chronic Fatigue Syndrome’ or ‘ICD-CFS’ in an attempt to ensure it is
understood that they are referring to the biomedical disorder classified by
the WHO at ICD 10-G93.3. See Professor Malcolm Hooper's et al document
entitled: What is ME? What is CFS? Information for Clinicians and Lawyers.
www.meactionuk.org.uk/What_Is_ME_What_Is_CFS.htm
And see:
http://meactionuk.org.uk/G93-3-ICD-10-compilation.jpg
http://meactionuk.org.uk/G93-3-ICD-10-index-closeup.jpg
www.who.int/classifications/icd/en/
Also see discussion on the controversial United States CDC disease labelling
/ classification at:
www.co-cure.org
www.cfids-me.org/
www.meresearch.org.uk/index.html
ME is a serious long-term and life changing disease with various
viruses/infectious-agents and toxic chemicals jointly implicated in
causation. ME leads to a shorter life-span in a significant minority of
patients (see section 2 below). Some viruses and other bugs have always been
able to trigger multi-system neurological diseases (e.g. Polio). However,
with the massive growth in environmental toxic chemicals since the 1940s,
the background load on human immune, nervous, endocrine and
anti-oxidant/de-toxing enzyme systems has increased exponentially. ME has
similarities to Gulf War Syndrome and ME patients have been called the
'Canaries' of our increasingly polluted planet that (should) serve as a
warning to modern industrial society.
See Professor Malcolm Hooper's peer-reviewed overview paper (regularly
updated online) entitled:
Myalgic Encephalomyelitis: A Review With Emphasis on Key Findings in
Biomedical Research. Journal of Clinical Pathology; 2007; 60:466-471. Doi:
10.1136/jcp.2006.042408.
http://jcp.bmj.com/cgi/content/abstract/60/5/466
For a biomedical research findings overview up to 2005 see:
Illustrations of Clinical Observations and International Research Findings
from 1955 to 2005 that demonstrate the organic aetiology of Myalgic
Encephalomyelitis / Chronic Fatigue Syndrome. Malcolm Hooper, Eileen
Marshall, Margaret Williams (For Gibson Inquiry):
www.meactionuk.org.uk/Organic_evidence_for_Gibson.doc
Also see: Essential investigations for people with ME/CFS? Margaret
Williams. January 2008.
http://meactionuk.org.uk/Essential_inve ... ith_ME.htm
There has been much misunderstanding and downright deceit (see section 3
below) over what ME is and is not. See Professor Malcolm Hooper's et al
document entitled:
What is ME? What is CFS? Information for Clinicians and Lawyers.
www.meactionuk.org.uk/What_Is_ME_What_Is_CFS.htm
Also see: The Late Effects of ME - Can they be distinguished from the
Post-polio syndrome? By Consultant Microbiologist and ME Specialist, Dr
Elizabeth (Betty) Dowsett:
www.ott.zynet.co.uk/polio/lincolnshire/ ... ctsme.html
2. ME RECOVERY & EARLY DEATH RATES:
ME has a very low patient recovery rate [3] and Consultant Microbiologist &
ME specialist Dr Elizabeth Dowsett stated that some 10% of patients die
early due to complications from ME - organ failure and other factors[4]. It
is believed that a great number of ME-related early deaths due to end-organ
failure etc are not picked up because they are simply put down to
heart-failure etc per se and not properly connected with ME as the
underlying cause. Moreover, it is arguable the majority of life-long ME
patients have some life span reduction due to increased oxidative stress
etc.
See Professor Leonard Jason's et al paper entitled: Causes of Death Among
Patients With Chronic Fatigue Syndrome. DePaul University, Chicago,
Illinois, USA Health Care for Women International, 27:615626, 2006.
Routledge. Copyright © Taylor & Francis Group, LLC. ISSN: 0739-9332 print /
1096-4665 online: DOI: 10.1080/07399330600803766
www.ingentaconnect.com/content/routledg ... 7/art00005
?crawler=true
The tragic death by ME of 32 year old Sophia Mirza was recently recorded by
a UK coroner and was the result of organ failure and alleged psychiatric
mistreatment/neglect. See:
The Inquest of Sophia Mirza. Sue Waddle, Invest in ME:
www.investinme.org/Article-050%20Sophia ... 01-RIP.htm
Inquest Implications:
www.meactionuk.org.uk/Inquest_Implications.htm
3. INTERNATIONALLY RESPECTED ME GUIDELINES & EXPERT COMMENT:
See: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: A Clinical Case
Definition and Guidelines for Medical Practitioners - An Overview of the
Canadian Consensus Document by Professor Bruce M Carruthers and Dr Marjorie
I Van de Sande.
UK NHS Clinician Endorsed / UK A4 Format - Version:
http://data.eastanglia.me.uk/pdfs/Canad ... iew_A4.pdf
See: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working
Case Definition, Diagnostic and Treatment Protocols (‘Canadian Criteria’
Full Version). Bruce M. Carruthers, Anil Kumar Jain, Kenny L. De Meirleir,
Daniel L. Peterson, Nancy G. Klimas, A. Martin Lerner, Alison C. Bested,
Pierre Flor-Henry, Pradip Joshi, A. C. Peter Powles, Jeffrey A. Sherkey,
Marjorie I. van de Sande. Journal of Chronic Fatigue Syndrome. Volume 11,
Number 1, 2003. At:
http://fm-cfs.ca/CFS-Protocol.pdf
See: Chronic Fatigue Syndrome: Assessment and Treatment of Patients with
ME/CFS: Clinical Guidelines for Psychiatrists. Eleanor Stein MD FRCP(C).
http://fm-cfs.ca/Psychiatry-overview.pdf
See: The Nightingale Definition of Myalgic Encephalomyelitis (M.E.).
Dr Byron Hyde, Nightingale Foundation, Toronto, Canada. Available at:
http://www.nightingale.ca/documents/Nig ... ion_en.pdf
The Complexities of Diagnosis. Byron Hyde. In: Handbook of Chronic Fatigue
Syndrome. Leonard A Jason et al. John Wiley & Sons, Inc. 2003.
www.nightingale.ca/documents/Complexiti ... gnosis.pdf
Dr Melvin Ramsay: Definitive Description of ME:
http://meactionuk.org.uk/ramsey.html
Dr Andrew Wallis: Research Description of ME:
http://meactionuk.org.uk/definition.html
4. DISINFORMATION, CONTROVERSY AND VESTED INTERESTS:
For an introduction to matters see K Short's paper entitled: I SEE NO SHIPS:
New Labour Health Policy and Myalgic Encephalomyelitis (ME). Available
online at:
www.cfids-me.org/angliameaction/ships.html
For the best and indispensable detailed overview of matters see: CORPORATE
COLLUSION. Professor Malcolm Hooper, Eileen Marshall & Margaret Williams. A
MUST READ document.
www.meactionuk.org.uk/Corporate_Collusion_2.htm
See: The Mental Health Movement: Persecution of Patients? A Consideration of
the Role of Professor Simon Wessely and Other Members of the “Wessely
School” in the Perception of Myalgic Encephalomyelitis (ME) in the UK.
Background Briefing for the House of Commons Select Health Committee.
Professor Malcolm Hooper. At:
www.meactionuk.org.uk/SELECT_CTTEE_FINAL_VERSION.htm
See: Proof Positive? Evidence of the deliberate creation via social
constructionism of “psychosocial” illness by cult indoctrination of State
agencies, and the impact of this on social and welfare policy. Eileen
Marshall, Margaret Williams 30th August 2005. At:
www.meactionuk.org.uk/PROOF_POSITIVE.htm
See: Concerns About Commercial Conflict of Interest Underlying the DWP
Handbook Entry on ME/CFS. Hooper, Marshall & Williams.
www.meactionuk.org.uk/HOOPER_CONCERNS_A ... OF_INTERES
T.htm
See: Wessely, Woodstock and Warfare? Margaret Williams. 9th August 2007. At:
www.meactionuk.org.uk/Wessely_Woodstock_and_Warfare.htm
See: Defiance of Science: A comparison of quotations about ME/CFS from the
MERUK International Research Conference held on 25.05.07 in Edinburgh with
quotations from the Wessely School (who call it “CFS/ME”). Malcolm Hooper,
Margaret Williams. 12th July 2007
www.meactionuk.org.uk/Defiance_of_Science.htm
See: A New and Simple Definition of Myalgic Encephalomyelitis and a New and
Simple Definition of Chronic Fatigue Syndrome & A Brief History of Myalgic
Encephalomyelitis And An Irreverent History of Chronic Fatigue Syndrome. Dr
Byron Hyde, Nightingale Foundation, Toronto, Canada. Available at:
http://www.investinme.org/Documents/PDF ... ttle%20Red
%20Book%20for%20www.investinme.org.pdf
Coercion As Cure? Eileen Marshall & Margaret Williams. 21st September 2007.
Available at:
http://meactionuk.org.uk/COERCION_AS_CURE.htm
Deliberate Dichotomy? Eileen Marshall & Margaret Williams. 10 November 2004.
Available at:
www.meactionuk.org.uk/Deliberate_Dichotomy.htm
See book: Skewed: Psychiatric Hegemony and the Manufacture of Mental Illness
in Multiple Chemical Sensitivity, Gulf War Syndrome, Myalgic
Encephalomyelitis and Chronic Fatigue Syndrome by Martin J Walker, Slingshot
Publications, ISBN: 0-9519646-4X.
www.slingshotpublications.com/skewed.html
See book: Osler’s Web; Inside the Labyrinth of the Chronic Fatigue Syndrome
Epidemic. Hillary Johnson. New York, Crown, 1996. 051770353X
www.amazon.com/Oslers-Web-Labyrinth-Syn ... 051770353X
To put what has happened to ME patients into overall context see the two
Films/DVDs entitled:
‘Sicko’ (Michael Moore) and ‘The Corporation’ at:
www.michaelmoore.com/sicko/index.html
www.thecorporation.com/
ME Action (UK). April 2008.
“…there are now over 4,000 published studies that show underlying biomedical
abnormalities in patients with this illness. It’s not an illness that people
can simply imagine that they have and it’s not a psychological illness. In
my view, that debate, which has waged for 20 years, should now be over”.
[Professor Anthony Komaroff, Harvard Medical School: Speaking at the USA
Government CDC (Centers for Disease Control and Prevention) press conference
on 3 November 2006. Also see endnote 1 below]
www.cdc.gov/od/oc/media/transcripts/t061103.htm
CONTENTS:
1. What ME is and What it is Not.
2. ME Recovery & Early Death Rates.
3. Internationally Respected ME Guidelines & Expert Comment.
4. Disinformation, Controversy and Vested Interests.
5. Concerns About UK NICE / NHS Guidelines and the Evidence Base.
6. The Gibson Parliamentary Group Findings.
7. Biomedical Evidence Summaries & Key Scientific Papers / Books.
8. Websites / Updates.
9. Endnotes.
1. WHAT ME IS AND WHAT IT IS NOT:
Myalgic Encephalomyelitis or M.E. (myalgic= muscle-pain, encephalo= brain,
myelitis= spinal-cord, encephalomyelitis= inflammation of brain &
spinal-cord) is a long-term organic/biomedical illness and is NOT the same
thing as 'Chronic Fatigue', short-term post viral syndrome or 'myalgic
encephalopathy'[2] and it is NOT a psychiatric or behavioral illness. ME has
been in the medical literature since the 1930s and classed as a physical
disease by the WHO (World Health Organisation) International Classification
of Diseases (ICD) since 1969 - currently listed at WHO ICD-10-G93.3 as a
Multi-System organic/physical NEUROLOGICAL Disorder with similarities to
Multiple-Sclerosis and Post-Polio-Syndrome. Documented clinical/research
abnormalities (see section 7 below) include: immune system/infectious;
cardiovascular, endocrine and digestive systems; muscle, cellular,
mitochondrial and genetic function and integrity; oxidative stress; central
nervous system - including brain and spinal cord; end organs. For
symptoms/signs and diagnostic information and discussion see section 3
below.
To complicate matters, the term ‘Chronic Fatigue Syndrome’ has been much
abused by vested interests trying to re-label biomedical WHO-recognized
ME/CFS/PVFS as a psychiatric disorder doing so allows insurance companies
and benefits agencies to potentially save billions of £/$ across the globe.
This is hugely impacting upon public as well as private health & welfare
policy - causing a recent UK Parliamentary inquiry group to caution:
“Given the vested interest private medical insurance companies have in
ensuring CFS/ME remain classified as a psychosocial illness there is blatant
conflict of interest here. The Group find this to be an area for serious
concern and recommends a full investigation of this possibility by the
appropriate standards body.”
[Page 30 of the joint Commons/Lords Gibson Parliamentary Inquiry Group
(GSRME) Report see section 6 below].
www.erythos.com/gibsonenquiry/index.html
Thus, many biomedical ME campaigners/clinicians if they use the misleading
term ‘Chronic Fatigue Syndrome/CFS’ at all, preface it with ‘ICD’: to read
‘ICD- Chronic Fatigue Syndrome’ or ‘ICD-CFS’ in an attempt to ensure it is
understood that they are referring to the biomedical disorder classified by
the WHO at ICD 10-G93.3. See Professor Malcolm Hooper's et al document
entitled: What is ME? What is CFS? Information for Clinicians and Lawyers.
www.meactionuk.org.uk/What_Is_ME_What_Is_CFS.htm
And see:
http://meactionuk.org.uk/G93-3-ICD-10-compilation.jpg
http://meactionuk.org.uk/G93-3-ICD-10-index-closeup.jpg
www.who.int/classifications/icd/en/
Also see discussion on the controversial United States CDC disease labelling
/ classification at:
www.co-cure.org
www.cfids-me.org/
www.meresearch.org.uk/index.html
ME is a serious long-term and life changing disease with various
viruses/infectious-agents and toxic chemicals jointly implicated in
causation. ME leads to a shorter life-span in a significant minority of
patients (see section 2 below). Some viruses and other bugs have always been
able to trigger multi-system neurological diseases (e.g. Polio). However,
with the massive growth in environmental toxic chemicals since the 1940s,
the background load on human immune, nervous, endocrine and
anti-oxidant/de-toxing enzyme systems has increased exponentially. ME has
similarities to Gulf War Syndrome and ME patients have been called the
'Canaries' of our increasingly polluted planet that (should) serve as a
warning to modern industrial society.
See Professor Malcolm Hooper's peer-reviewed overview paper (regularly
updated online) entitled:
Myalgic Encephalomyelitis: A Review With Emphasis on Key Findings in
Biomedical Research. Journal of Clinical Pathology; 2007; 60:466-471. Doi:
10.1136/jcp.2006.042408.
http://jcp.bmj.com/cgi/content/abstract/60/5/466
For a biomedical research findings overview up to 2005 see:
Illustrations of Clinical Observations and International Research Findings
from 1955 to 2005 that demonstrate the organic aetiology of Myalgic
Encephalomyelitis / Chronic Fatigue Syndrome. Malcolm Hooper, Eileen
Marshall, Margaret Williams (For Gibson Inquiry):
www.meactionuk.org.uk/Organic_evidence_for_Gibson.doc
Also see: Essential investigations for people with ME/CFS? Margaret
Williams. January 2008.
http://meactionuk.org.uk/Essential_inve ... ith_ME.htm
There has been much misunderstanding and downright deceit (see section 3
below) over what ME is and is not. See Professor Malcolm Hooper's et al
document entitled:
What is ME? What is CFS? Information for Clinicians and Lawyers.
www.meactionuk.org.uk/What_Is_ME_What_Is_CFS.htm
Also see: The Late Effects of ME - Can they be distinguished from the
Post-polio syndrome? By Consultant Microbiologist and ME Specialist, Dr
Elizabeth (Betty) Dowsett:
www.ott.zynet.co.uk/polio/lincolnshire/ ... ctsme.html
2. ME RECOVERY & EARLY DEATH RATES:
ME has a very low patient recovery rate [3] and Consultant Microbiologist &
ME specialist Dr Elizabeth Dowsett stated that some 10% of patients die
early due to complications from ME - organ failure and other factors[4]. It
is believed that a great number of ME-related early deaths due to end-organ
failure etc are not picked up because they are simply put down to
heart-failure etc per se and not properly connected with ME as the
underlying cause. Moreover, it is arguable the majority of life-long ME
patients have some life span reduction due to increased oxidative stress
etc.
See Professor Leonard Jason's et al paper entitled: Causes of Death Among
Patients With Chronic Fatigue Syndrome. DePaul University, Chicago,
Illinois, USA Health Care for Women International, 27:615626, 2006.
Routledge. Copyright © Taylor & Francis Group, LLC. ISSN: 0739-9332 print /
1096-4665 online: DOI: 10.1080/07399330600803766
www.ingentaconnect.com/content/routledg ... 7/art00005
?crawler=true
The tragic death by ME of 32 year old Sophia Mirza was recently recorded by
a UK coroner and was the result of organ failure and alleged psychiatric
mistreatment/neglect. See:
The Inquest of Sophia Mirza. Sue Waddle, Invest in ME:
www.investinme.org/Article-050%20Sophia ... 01-RIP.htm
Inquest Implications:
www.meactionuk.org.uk/Inquest_Implications.htm
3. INTERNATIONALLY RESPECTED ME GUIDELINES & EXPERT COMMENT:
See: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome: A Clinical Case
Definition and Guidelines for Medical Practitioners - An Overview of the
Canadian Consensus Document by Professor Bruce M Carruthers and Dr Marjorie
I Van de Sande.
UK NHS Clinician Endorsed / UK A4 Format - Version:
http://data.eastanglia.me.uk/pdfs/Canad ... iew_A4.pdf
See: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working
Case Definition, Diagnostic and Treatment Protocols (‘Canadian Criteria’
Full Version). Bruce M. Carruthers, Anil Kumar Jain, Kenny L. De Meirleir,
Daniel L. Peterson, Nancy G. Klimas, A. Martin Lerner, Alison C. Bested,
Pierre Flor-Henry, Pradip Joshi, A. C. Peter Powles, Jeffrey A. Sherkey,
Marjorie I. van de Sande. Journal of Chronic Fatigue Syndrome. Volume 11,
Number 1, 2003. At:
http://fm-cfs.ca/CFS-Protocol.pdf
See: Chronic Fatigue Syndrome: Assessment and Treatment of Patients with
ME/CFS: Clinical Guidelines for Psychiatrists. Eleanor Stein MD FRCP(C).
http://fm-cfs.ca/Psychiatry-overview.pdf
See: The Nightingale Definition of Myalgic Encephalomyelitis (M.E.).
Dr Byron Hyde, Nightingale Foundation, Toronto, Canada. Available at:
http://www.nightingale.ca/documents/Nig ... ion_en.pdf
The Complexities of Diagnosis. Byron Hyde. In: Handbook of Chronic Fatigue
Syndrome. Leonard A Jason et al. John Wiley & Sons, Inc. 2003.
www.nightingale.ca/documents/Complexiti ... gnosis.pdf
Dr Melvin Ramsay: Definitive Description of ME:
http://meactionuk.org.uk/ramsey.html
Dr Andrew Wallis: Research Description of ME:
http://meactionuk.org.uk/definition.html
4. DISINFORMATION, CONTROVERSY AND VESTED INTERESTS:
For an introduction to matters see K Short's paper entitled: I SEE NO SHIPS:
New Labour Health Policy and Myalgic Encephalomyelitis (ME). Available
online at:
www.cfids-me.org/angliameaction/ships.html
For the best and indispensable detailed overview of matters see: CORPORATE
COLLUSION. Professor Malcolm Hooper, Eileen Marshall & Margaret Williams. A
MUST READ document.
www.meactionuk.org.uk/Corporate_Collusion_2.htm
See: The Mental Health Movement: Persecution of Patients? A Consideration of
the Role of Professor Simon Wessely and Other Members of the “Wessely
School” in the Perception of Myalgic Encephalomyelitis (ME) in the UK.
Background Briefing for the House of Commons Select Health Committee.
Professor Malcolm Hooper. At:
www.meactionuk.org.uk/SELECT_CTTEE_FINAL_VERSION.htm
See: Proof Positive? Evidence of the deliberate creation via social
constructionism of “psychosocial” illness by cult indoctrination of State
agencies, and the impact of this on social and welfare policy. Eileen
Marshall, Margaret Williams 30th August 2005. At:
www.meactionuk.org.uk/PROOF_POSITIVE.htm
See: Concerns About Commercial Conflict of Interest Underlying the DWP
Handbook Entry on ME/CFS. Hooper, Marshall & Williams.
www.meactionuk.org.uk/HOOPER_CONCERNS_A ... OF_INTERES
T.htm
See: Wessely, Woodstock and Warfare? Margaret Williams. 9th August 2007. At:
www.meactionuk.org.uk/Wessely_Woodstock_and_Warfare.htm
See: Defiance of Science: A comparison of quotations about ME/CFS from the
MERUK International Research Conference held on 25.05.07 in Edinburgh with
quotations from the Wessely School (who call it “CFS/ME”). Malcolm Hooper,
Margaret Williams. 12th July 2007
www.meactionuk.org.uk/Defiance_of_Science.htm
See: A New and Simple Definition of Myalgic Encephalomyelitis and a New and
Simple Definition of Chronic Fatigue Syndrome & A Brief History of Myalgic
Encephalomyelitis And An Irreverent History of Chronic Fatigue Syndrome. Dr
Byron Hyde, Nightingale Foundation, Toronto, Canada. Available at:
http://www.investinme.org/Documents/PDF ... ttle%20Red
%20Book%20for%20www.investinme.org.pdf
Coercion As Cure? Eileen Marshall & Margaret Williams. 21st September 2007.
Available at:
http://meactionuk.org.uk/COERCION_AS_CURE.htm
Deliberate Dichotomy? Eileen Marshall & Margaret Williams. 10 November 2004.
Available at:
www.meactionuk.org.uk/Deliberate_Dichotomy.htm
See book: Skewed: Psychiatric Hegemony and the Manufacture of Mental Illness
in Multiple Chemical Sensitivity, Gulf War Syndrome, Myalgic
Encephalomyelitis and Chronic Fatigue Syndrome by Martin J Walker, Slingshot
Publications, ISBN: 0-9519646-4X.
www.slingshotpublications.com/skewed.html
See book: Osler’s Web; Inside the Labyrinth of the Chronic Fatigue Syndrome
Epidemic. Hillary Johnson. New York, Crown, 1996. 051770353X
www.amazon.com/Oslers-Web-Labyrinth-Syn ... 051770353X
To put what has happened to ME patients into overall context see the two
Films/DVDs entitled:
‘Sicko’ (Michael Moore) and ‘The Corporation’ at:
www.michaelmoore.com/sicko/index.html
www.thecorporation.com/