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Geplaatst: 03 feb 2013, 23:53
Graag nog een mailtje versturen mensen. Vandaag. Zo gedaan. Laat ze weten dat de hele wereld mee kijkt!
Hi folks: ME/CFS activist Bob Miller has started a hunger strike. Let's support it to leverage as much attention as possible, and to shame the HHS and FDA into action. Please send this below notice to everyone (email, facebook, listservs, etc), so we can get the attention of the HHS & FDA-powers-that-be. Post widely.
_______
... FORWARD WIDELY ...
WHAT
Supporting ME/CFS Patient on Hunger Strike: Send this email to HHS, FDA
WHEN
Right now! Sunday and Monday, Feb 3rd and 4th, 2013
SEND TO
Please send this email to the US Dept of Health and Human Services and the FDA:
kathleen.sebelius@hhs.gov, sandra.kweder@fda.hhs.gov, margaret.hamburg@fda.hhs.gov, janet.woodcock@fda.hhs.gov, howard.koh@hhs.gov
SUBJECT LINE:
Urgent: Well-Known Journalist & AIDS Activist Support Patient Hunger Strike
Dear Secretary Sebelius, Sandra Kweder, Margaret Hamburg, Janet Woodcock, Howard Koh:
Shame on you for ignoring the needs of one million disabled ME/CFS patients, many of whom are bedridden and homebound, suffering for decades with little help from the US government. You and the NIH dedicate only $6 million dollars each year for ME/CFS research -- a pittance.
Robert Miller's hunger strike continues -- and is gaining attention -- as we all wait for the FDA's decision, due Monday, Feb 4, 2013, on whether or not to approve Ampligen, the first medication ever considered by the FDA for ME/CFS.
There are two developments regarding this:
Well-known HIV/AIDS activist, Cleve Jones, founder of the AIDS quilt project, came out in support of ME/CFS patient Robert Miller's hunger strike. Mr. Jones writes: “My friend is on a hunger strike to get the first medicine approved for his severe case of chronic fatigue syndrome. FDA is likely to deny the drug this weekend. We know we wouldn’t be where we are today if some of us hadn’t protested inaction by federal agencies on AIDS treatments. Email: kathleen.sebelius@hhs.gov Urge FDA to approve Ampligen, so all CFS patients can have just one treatment option. CFS patients suffer without any treatments, and I can remember those days in my life. I urge Secretary Sebelius to approve Ampligen for CFS and apply what we learned with HIV about getting treatments to patients like every minute counts.”
Additionally, long-time Washington DC journalist, Llewellyn King, commented on ME/CFS sufferer Robert Miller's hunger strike on his PBS television program, "White House Chronicle." It is airing this weekend on PBS stations in Washington --Sunday, Feb. 3 at 9 a.m. on WETA, Channel 26; Sunday at 11:30 a.m. and 6:30 p.m. on WHUT, Channel 32. It will air throughout the week on some 200 PBS and public, educational and governmental cable TV stations and worldwide on Voice of America Television. An audio version of the episode will air Saturday, Feb. 2 at 9:30 a.m., 3:30 p.m. and 9:30 p.m. on Sirius XM Radio's POTUS (Politics of the United States) Channel 124. The episode will be posted on the "White House Chronicle" Web site, whchronicle.com, on Monday, Feb. 4.
One million disabled Americans have been ignored for over 2 decades. This can not continue. We desperately need your help.
Best,
Your name
Location
Years sick (or state your relationship to patient)
Hi folks: ME/CFS activist Bob Miller has started a hunger strike. Let's support it to leverage as much attention as possible, and to shame the HHS and FDA into action. Please send this below notice to everyone (email, facebook, listservs, etc), so we can get the attention of the HHS & FDA-powers-that-be. Post widely.
_______
... FORWARD WIDELY ...
WHAT
Supporting ME/CFS Patient on Hunger Strike: Send this email to HHS, FDA
WHEN
Right now! Sunday and Monday, Feb 3rd and 4th, 2013
SEND TO
Please send this email to the US Dept of Health and Human Services and the FDA:
kathleen.sebelius@hhs.gov, sandra.kweder@fda.hhs.gov, margaret.hamburg@fda.hhs.gov, janet.woodcock@fda.hhs.gov, howard.koh@hhs.gov
SUBJECT LINE:
Urgent: Well-Known Journalist & AIDS Activist Support Patient Hunger Strike
Dear Secretary Sebelius, Sandra Kweder, Margaret Hamburg, Janet Woodcock, Howard Koh:
Shame on you for ignoring the needs of one million disabled ME/CFS patients, many of whom are bedridden and homebound, suffering for decades with little help from the US government. You and the NIH dedicate only $6 million dollars each year for ME/CFS research -- a pittance.
Robert Miller's hunger strike continues -- and is gaining attention -- as we all wait for the FDA's decision, due Monday, Feb 4, 2013, on whether or not to approve Ampligen, the first medication ever considered by the FDA for ME/CFS.
There are two developments regarding this:
Well-known HIV/AIDS activist, Cleve Jones, founder of the AIDS quilt project, came out in support of ME/CFS patient Robert Miller's hunger strike. Mr. Jones writes: “My friend is on a hunger strike to get the first medicine approved for his severe case of chronic fatigue syndrome. FDA is likely to deny the drug this weekend. We know we wouldn’t be where we are today if some of us hadn’t protested inaction by federal agencies on AIDS treatments. Email: kathleen.sebelius@hhs.gov Urge FDA to approve Ampligen, so all CFS patients can have just one treatment option. CFS patients suffer without any treatments, and I can remember those days in my life. I urge Secretary Sebelius to approve Ampligen for CFS and apply what we learned with HIV about getting treatments to patients like every minute counts.”
Additionally, long-time Washington DC journalist, Llewellyn King, commented on ME/CFS sufferer Robert Miller's hunger strike on his PBS television program, "White House Chronicle." It is airing this weekend on PBS stations in Washington --Sunday, Feb. 3 at 9 a.m. on WETA, Channel 26; Sunday at 11:30 a.m. and 6:30 p.m. on WHUT, Channel 32. It will air throughout the week on some 200 PBS and public, educational and governmental cable TV stations and worldwide on Voice of America Television. An audio version of the episode will air Saturday, Feb. 2 at 9:30 a.m., 3:30 p.m. and 9:30 p.m. on Sirius XM Radio's POTUS (Politics of the United States) Channel 124. The episode will be posted on the "White House Chronicle" Web site, whchronicle.com, on Monday, Feb. 4.
One million disabled Americans have been ignored for over 2 decades. This can not continue. We desperately need your help.
Best,
Your name
Location
Years sick (or state your relationship to patient)
