@ Nabo
Gc Maf is straf spul voor ernstig zieke mensen.
Er is een hele topic aan gewijd op Phoenix Rising en de mensen die het product verdelen, zijn heel correct in hun antwoord. Ik copieer hun mail in een apart blok hieronder.
http://www.forums.aboutmecfs.org/showth ... cMAF-trial
De oorspronkelijke uitvinder van Gc Maf is bezig met het ontwikkelen van een synthetische versie omdat de huidige dierlijke en menselijke DNA bevat.
Zijn bevindingen zouden - volgens het andere forum - dit najaar bekend moeten worden gemaakt.
Behandeling GcMAF
Moderator: Moderators
Laatst gewijzigd door marlène op 11 nov 2010, 10:41, 1 keer totaal gewijzigd.
http://opstaanmetmecvs.blogspot.com
Het is makkelijker een atoom te splitsen dan een vooroordeel. - Einstein
Be critical and use your own judgement when using this information. - Marlène R.
Het is makkelijker een atoom te splitsen dan een vooroordeel. - Einstein
Be critical and use your own judgement when using this information. - Marlène R.
The word is out. Prof. Kenny DeMeirleir is running a trial with 10 people on GcMAF (posted on Cort's Forum). In addition 2 other people from your community we currently know of are trying GcMAF, one of them XMRV positive, the other one pending results of the XMRV test. Using GcMAF is not a miracle cure, eventhough it may be presented like one on the internet or by certain physicians. Patients (incl. cancer and hiv patients) who are currently using our GcMAF report varying experiences. Some struggle greatly with the effects of their suddenly reactvated immune function as their bodies are fighting off cancer or viruses now. There is data coming from a research project involving genetic issues that might tell us for whom exactly GcMAF will be a solution and who might need some additional treatment in order for GcMAF to work for them. In addition, we need to wait and see what the current GcMAF patients' experience will be before we distribute to people outside our area.
We fully understand that many of you have been suffering from these illnesses for decades and the kind of opposition, disbelief and insult you have received from the medical community and most likely from your family and friends as well. Many have injustly lost so much of their quality of life, some are left completely bedridden without help, some have died and some have committed suicide because they simply could not go on living with these illnesses without hope of ever finding out what is wrong with them, let alone hope of finding a cure. I hope by mentioning this you realise that we are aware of the devastating effects of your illnesses, and we are sorry, deeply sorry. If GcMAF really is of value for CFS / FM patients, we will do everything in our power to make it widely available to patients.
GcMAF is not a vitamin supplement, it is a very powerful immune stimulator. The effects can be immense. We know that many of you don't 'just' suffer from CFS and/or FM, but many also have undiagnosed 'mainstream' immune disorders and other conditions because of the lack of attention you have received from the medical community. GcMAF can be dangerous in auto immune patients. GcMAF cannot be used with some other protocols and also not with some medications. Because every patient is very different we cannot make general recommendations and will only discuss these topics with those who have been accepted in our trial and will start GcMAF soon.
Our organization can ONLY help people in The Netherlands, Belgium and the UK at the moment. We are looking for ways to increase production and for ways to ship to other countries and continents, but we have not found a secure way to get it through customs yet. GcMAF is a product containing human and animal DNA, there are extensive restrictions for shipping those type of products in some countries.
Please be aware that we are not a medical organization. This is a patient initiative to make GcMAF available to larger groups of patients, because after 17 years of running small clinical trials, the original researcher still refuses to do so. If and when a patient decides to use GcMAF it will be at their own risk and cost. Our GcMAF is safe and the macrophage activty has been tested. It is a functioning product. To monitor the exact effects of GcMAF, we are currently running our own small trials to gain some more experience, but the plan is to make it available for the public at an affordable price. Officially there are no doctors involved in this project. If and when we would be able to send someone GcMAF, they would have to work together with their current physician or a nurse to administer the (first) injection and to monitor your progress.
I am sure you have online friends in The Netherlands, Belgium or The UK. They may contact us so we can run one more trial with patients in our area who we can monitor closely. We will require extensive medical reports supporting any (sub)diagnosis these patients have in the form of a PDF of the original test results/physicians' reports etc, and a list of other symptoms they might have, and a list of current medications and supplements etc before placing them on the waiting list. It is estimated we can start the third trial within 2 months, but we will help patients based on the date of application (first in first send) because we cannot differentiate between one sufferer and another. So, the sooner we have the patient info the better.
If you are receiving this message and do not live within our 'trial area' basically the same applies. Apart from the fact that we first want to run a more extensive trial in our area, the only added criteria will be the question wether we can ship to where you live or not. But perhaps your international patient network can assist with that. Please do not offer to travel to our area to speed up the process, patients in our area actually have to be permanent residents.
A condition from us will be that we will receive medical updates regarding your illness. That means having to re-do the XMRV test after treatment. That means having to re-do all tests (if relevant) that showed abnormalities in the past. And we will ask patients to make a public statement if and when GcMAF has contributed to restoring their health. Without this information we cannot substantiate GcMAF cures anything. If we cannot prove that, we cannot continue our project, which would endanger the physical distribution of GcMAF to yourself and other patients in the future.
Kind regards,
The GcMAF.info team
We fully understand that many of you have been suffering from these illnesses for decades and the kind of opposition, disbelief and insult you have received from the medical community and most likely from your family and friends as well. Many have injustly lost so much of their quality of life, some are left completely bedridden without help, some have died and some have committed suicide because they simply could not go on living with these illnesses without hope of ever finding out what is wrong with them, let alone hope of finding a cure. I hope by mentioning this you realise that we are aware of the devastating effects of your illnesses, and we are sorry, deeply sorry. If GcMAF really is of value for CFS / FM patients, we will do everything in our power to make it widely available to patients.
GcMAF is not a vitamin supplement, it is a very powerful immune stimulator. The effects can be immense. We know that many of you don't 'just' suffer from CFS and/or FM, but many also have undiagnosed 'mainstream' immune disorders and other conditions because of the lack of attention you have received from the medical community. GcMAF can be dangerous in auto immune patients. GcMAF cannot be used with some other protocols and also not with some medications. Because every patient is very different we cannot make general recommendations and will only discuss these topics with those who have been accepted in our trial and will start GcMAF soon.
Our organization can ONLY help people in The Netherlands, Belgium and the UK at the moment. We are looking for ways to increase production and for ways to ship to other countries and continents, but we have not found a secure way to get it through customs yet. GcMAF is a product containing human and animal DNA, there are extensive restrictions for shipping those type of products in some countries.
Please be aware that we are not a medical organization. This is a patient initiative to make GcMAF available to larger groups of patients, because after 17 years of running small clinical trials, the original researcher still refuses to do so. If and when a patient decides to use GcMAF it will be at their own risk and cost. Our GcMAF is safe and the macrophage activty has been tested. It is a functioning product. To monitor the exact effects of GcMAF, we are currently running our own small trials to gain some more experience, but the plan is to make it available for the public at an affordable price. Officially there are no doctors involved in this project. If and when we would be able to send someone GcMAF, they would have to work together with their current physician or a nurse to administer the (first) injection and to monitor your progress.
I am sure you have online friends in The Netherlands, Belgium or The UK. They may contact us so we can run one more trial with patients in our area who we can monitor closely. We will require extensive medical reports supporting any (sub)diagnosis these patients have in the form of a PDF of the original test results/physicians' reports etc, and a list of other symptoms they might have, and a list of current medications and supplements etc before placing them on the waiting list. It is estimated we can start the third trial within 2 months, but we will help patients based on the date of application (first in first send) because we cannot differentiate between one sufferer and another. So, the sooner we have the patient info the better.
If you are receiving this message and do not live within our 'trial area' basically the same applies. Apart from the fact that we first want to run a more extensive trial in our area, the only added criteria will be the question wether we can ship to where you live or not. But perhaps your international patient network can assist with that. Please do not offer to travel to our area to speed up the process, patients in our area actually have to be permanent residents.
A condition from us will be that we will receive medical updates regarding your illness. That means having to re-do the XMRV test after treatment. That means having to re-do all tests (if relevant) that showed abnormalities in the past. And we will ask patients to make a public statement if and when GcMAF has contributed to restoring their health. Without this information we cannot substantiate GcMAF cures anything. If we cannot prove that, we cannot continue our project, which would endanger the physical distribution of GcMAF to yourself and other patients in the future.
Kind regards,
The GcMAF.info team
http://opstaanmetmecvs.blogspot.com
Het is makkelijker een atoom te splitsen dan een vooroordeel. - Einstein
Be critical and use your own judgement when using this information. - Marlène R.
Het is makkelijker een atoom te splitsen dan een vooroordeel. - Einstein
Be critical and use your own judgement when using this information. - Marlène R.
Eigenlijk zit het een beetje anders in elkaar... De 'ontdekker' zoekt een synthetische versie omdat dit te patenteren valt in tegenstelling tot GcMaf nu. Dit is namelijk een eiwit dat bij normaal, gezonde mensen voorkomt.marlène schreef: De oorspronkelijke uitvinder van Gc Maf is bezig met het ontwikkelen van een synthetische versie omdat de huidige dierlijke en menselijke DNA bevat.
Zijn bevindingen zouden - volgens het andere forum - dit najaar bekend moeten worden gemaakt.
Hij heeft/had een patent op de wijze om dit bij personen te onttrekken maar ik vermoed dat dit patent bijna verlopen is.
Dit is de reden waarom GcMaf in een obscuur hoekje zit en waarom er geen deftige trials met gebeurd zijn. Lichaamseigen stoffen kan je niet patenteren = geen geld verdienen. Dr. Nobuto Yamamoto heeft GcMaf reeds in 1993 ontdekt en is sindsien al op zoek naar een synthetische versie maw er veel geld uit te slaan.
Als dit blijkt te werken bij cvs verdient DML een standbeeld en Yamamoto iets heel anders.....
Zoals ik al eerder zei: "Iedereen wordt er beter van, behalve de zieke zelf."
Wij mogen wachten op een mirakel.
Wij mogen wachten op een mirakel.
http://opstaanmetmecvs.blogspot.com
Het is makkelijker een atoom te splitsen dan een vooroordeel. - Einstein
Be critical and use your own judgement when using this information. - Marlène R.
Het is makkelijker een atoom te splitsen dan een vooroordeel. - Einstein
Be critical and use your own judgement when using this information. - Marlène R.
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zonaanbidster
- Gevorderd lid
- Berichten: 949
- Lid geworden op: 08 jun 2007, 23:49
In september hebben ze dat gecontroleerd, maar ik weet mijn resultaat niet daarvan DML zei er niks van, en hij zei ook dat nog niet alle resultaten binnen waren. En voor mijn inspuiting hebben ze nog eens bloef afgenomen om een andere XMRV test te doen en hebben ze die GVDR nog eens aangekruist (per vergissing dus) want ik heb dan naar het labo gebeld en die zeiden dat die test idd al in september was aangevraagd, nuja of het resultaat daarvan al bekend is weet ik niet. Maar ze zouden het dan annuleren.
Heeft iemand een bijsluiter kunnen vinden van Gc-MAF. Ik wil nu toch wel weten wat ik iedere week precies krijg ingespoten. Volgens die mail is het niet niks.... of zie ik dat nu weer verkeerd.
(Ik had net best een lange reactie gemaakt op bovenstaande stukjes, maar er is weer eens iets fout gegaan en ik heb niet de puf om weer opnieuw te beginnen)
Sorry, binnenkort een update over mijn Gc-MAF-behandeling, heb er nu 5 gehad.
(Ik had net best een lange reactie gemaakt op bovenstaande stukjes, maar er is weer eens iets fout gegaan en ik heb niet de puf om weer opnieuw te beginnen)
Sorry, binnenkort een update over mijn Gc-MAF-behandeling, heb er nu 5 gehad.
volgens DML is het totaal ongevaarlijk en een lichaamseigen stof.
Tja ik denk dat we ons er niet teveel zorgen moeten in maken eigenlijk.
Veel succes nog met je spuiten. Heb je er soms een negatieve reactie op?
Ohja en welke dagen en uren kan je eigenlijk om je spuit gaan? Want ik ben wat chauffeurs aan het zoeken en zou graag een planning maken voor de komende weken. Ik heb mijn vraag al gemaild naar himunitas maar nog geen reactie op gekregen.
Veel succes nog
Tja ik denk dat we ons er niet teveel zorgen moeten in maken eigenlijk.
Veel succes nog met je spuiten. Heb je er soms een negatieve reactie op?
Ohja en welke dagen en uren kan je eigenlijk om je spuit gaan? Want ik ben wat chauffeurs aan het zoeken en zou graag een planning maken voor de komende weken. Ik heb mijn vraag al gemaild naar himunitas maar nog geen reactie op gekregen.
Veel succes nog
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zonaanbidster
- Gevorderd lid
- Berichten: 949
- Lid geworden op: 08 jun 2007, 23:49
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verlorengezondheidman
- Gevorderd lid
- Berichten: 6231
- Lid geworden op: 02 aug 2008, 17:24
Is er een verschil tussen een behandelplan van XMRV en van MLV 
Een zoönose is een infectieziekte die kan worden overgedragen van dieren op mensen.
http://www.youtube.com/watch?v=wVQy9-cyL98
LyME en co's INFO-topic!
http://www.me-gids.net/index.php?name=P ... ht=#218551
http://www.youtube.com/watch?v=wVQy9-cyL98
LyME en co's INFO-topic!
http://www.me-gids.net/index.php?name=P ... ht=#218551