Daar moet je ook voor oppassen heb ik gelezen
Maar ik probeer inderdaad een koolhydraatarm dieet te volgen
Helemaal helder ben ik nog steeds niet
Maar de afgelopen 4 jaar heb ik heel veel pijnstillers geslikt; Lyrica, Tramadol, Amitriptyline, Arcoxia enz
Die geef ik dus maar de schuld van mijn vergeetachtigheid
Door de LDN gaat het gelukkig wel beter
LDN (Low Dose Naltrexone)
Moderator: Moderators
Dit bericht van een schildklierpatient kreeg ik binnen via de LDN yahou group:
My question, Can LDN completely get rid of an antibody????
I have had lab results with TSI (antibody) in the 90's to the low 100's varying over the last five years. Never over the lab range of 125. I started taking LDN in late May of this year. I immediately, over the first 2-3 weeks, had results in my thryoid symptoms.
I cut back everything I was doing to counter-act my hyperT tendencies quickly. Fast forward to now. I have just recieved my latest labs. My TSI result is "Negative", and my thyroid labs look fabulous. Just curious at to what that means and if any of you have heard of antibodies just going away that quick.
Thanks in advance for your replies.
Best wishes,
Kim : )
9-10-10 Thyroid labs:
Lab values (ranges)
TSH 2.13 (.4-4.5)
FT4 1.2 (.8-1.
FT3 305 (230-420)
Reverse T3 25 (11-32)
Antibodies tested:
Tg <20 (<20)
TPO 12 (<35)
TSI Negative (>125)
My question, Can LDN completely get rid of an antibody????
I have had lab results with TSI (antibody) in the 90's to the low 100's varying over the last five years. Never over the lab range of 125. I started taking LDN in late May of this year. I immediately, over the first 2-3 weeks, had results in my thryoid symptoms.
I cut back everything I was doing to counter-act my hyperT tendencies quickly. Fast forward to now. I have just recieved my latest labs. My TSI result is "Negative", and my thyroid labs look fabulous. Just curious at to what that means and if any of you have heard of antibodies just going away that quick.
Thanks in advance for your replies.
Best wishes,
Kim : )
9-10-10 Thyroid labs:
Lab values (ranges)
TSH 2.13 (.4-4.5)
FT4 1.2 (.8-1.
FT3 305 (230-420)
Reverse T3 25 (11-32)
Antibodies tested:
Tg <20 (<20)
TPO 12 (<35)
TSI Negative (>125)
En deze dan:
I just had my first blood test since going on LDN (6 months ago), and my SED and CRP inflammatory markers were normal for the first time ever since i was diagnosed with crohn's 10 years ago.
It was such a shock because in the past, they have always been really high, even when i have felt symptom free, so there has really been a drastic change. it's funny,
i wasnt expecting to find such an improvement in my blood work because i havnt felt 100% symptom free. but i think this indicates that i'm possibly in remission for the first time since being diagnosed. so i just wanted to share with you all - and hopefully provide further reassurance that LDN can have amazing results.
Mon
I just had my first blood test since going on LDN (6 months ago), and my SED and CRP inflammatory markers were normal for the first time ever since i was diagnosed with crohn's 10 years ago.
It was such a shock because in the past, they have always been really high, even when i have felt symptom free, so there has really been a drastic change. it's funny,
i wasnt expecting to find such an improvement in my blood work because i havnt felt 100% symptom free. but i think this indicates that i'm possibly in remission for the first time since being diagnosed. so i just wanted to share with you all - and hopefully provide further reassurance that LDN can have amazing results.
Mon
En de laatste was van een MS patiente
I joined this group well over a year ago and am pretty much a lurker so do not post much but did want to share some wonderfully awesome news!
I was diagnosed with relapsing/remitting MS in October of 2007 – my neuro put me on Copaxone and I religiously followed that therapy for almost 1-1/2 years.
I was still having some symptoms and did not like what the daily injections were doing to my body both inside and out (Copaxone was eating away at my fatty layer and left behind large depressions at all injection sites).
When I asked my neuro (in January 2009) of any other options he told me I had none … yeah, right … I didn’t believe it. Thus began my quest to take my health into my own hands and I began some earnest research into alternative treatments for MS.
This research lead me here. I started taking LDN in July of 2009 against the wishes of my neuro who would not prescribe it for me – thanks to this list, I found a great Doctor and get my LDN from Skip’s Pharmacy. I have been taking 4.5 mg successfully since the beginning and feeling fabulous.
Fast forward to last Thursday … my neuro has been wanting to get an MRI done as it has been three years but I truly believe he was ever curious about this mystery drug I was taking and its effects on my health/MS.
I had not seen him in over a year and in the mean time I had lost 18 lbs. and am back at the gym lifting weights and feeling like a champ. I truly believe he thought I was going to come rolling into his office in a wheelchair because the look on his face when he saw me in my “fighting” condition was priceless to say the least.
My MRI was 3 hours long as they did it with contrast and without … I have been feeling like a million bucks with no symptoms but still was nervous about the results as you just never know what is going on inside the ol’ skull, ya know?
I am thrilled to report that my MRI results showed that the few minuet lesions I had in 2007 are still there but so very faint … no activity … no new leisions … nuthin. (= Let me tell you, I wanted to jump up out of my chair and do the “nanner-nanner-poo-poo” dance but I handled it with grace and dignity.
The only thing my neuro could say were things like “WOW” and “incredible” and “fabulous”. He still did not ask any questions about LDN and ended our visit with “I am so glad that this treatment is working for YOU”. <big>
So there you have it … I feel vindicated in my choice to take control of my MS and thanks to LDN, am feeling like a rock star (and now have actual proof) that it is all good! Just had to report in ….
Sandy Church
I joined this group well over a year ago and am pretty much a lurker so do not post much but did want to share some wonderfully awesome news!
I was diagnosed with relapsing/remitting MS in October of 2007 – my neuro put me on Copaxone and I religiously followed that therapy for almost 1-1/2 years.
I was still having some symptoms and did not like what the daily injections were doing to my body both inside and out (Copaxone was eating away at my fatty layer and left behind large depressions at all injection sites).
When I asked my neuro (in January 2009) of any other options he told me I had none … yeah, right … I didn’t believe it. Thus began my quest to take my health into my own hands and I began some earnest research into alternative treatments for MS.
This research lead me here. I started taking LDN in July of 2009 against the wishes of my neuro who would not prescribe it for me – thanks to this list, I found a great Doctor and get my LDN from Skip’s Pharmacy. I have been taking 4.5 mg successfully since the beginning and feeling fabulous.
Fast forward to last Thursday … my neuro has been wanting to get an MRI done as it has been three years but I truly believe he was ever curious about this mystery drug I was taking and its effects on my health/MS.
I had not seen him in over a year and in the mean time I had lost 18 lbs. and am back at the gym lifting weights and feeling like a champ. I truly believe he thought I was going to come rolling into his office in a wheelchair because the look on his face when he saw me in my “fighting” condition was priceless to say the least.
My MRI was 3 hours long as they did it with contrast and without … I have been feeling like a million bucks with no symptoms but still was nervous about the results as you just never know what is going on inside the ol’ skull, ya know?
I am thrilled to report that my MRI results showed that the few minuet lesions I had in 2007 are still there but so very faint … no activity … no new leisions … nuthin. (= Let me tell you, I wanted to jump up out of my chair and do the “nanner-nanner-poo-poo” dance but I handled it with grace and dignity.
The only thing my neuro could say were things like “WOW” and “incredible” and “fabulous”. He still did not ask any questions about LDN and ended our visit with “I am so glad that this treatment is working for YOU”. <big>
So there you have it … I feel vindicated in my choice to take control of my MS and thanks to LDN, am feeling like a rock star (and now have actual proof) that it is all good! Just had to report in ….
Sandy Church
En deze zat net in mijn mailbox
Hi! Yes, Me!
--------------------------------------------------------------------------------
To: lowdosenaltrexone@yahoogroups.com
From: rdavidoff@hotmail.com
Date: Sat, 18 Sep 2010 18:27:37 +0000
Subject: [lowdosenaltrexone] Any Studies (or anyone) using LDN and Chronic Fatigue Syndrome?
I have Chronic Fatigue Syndrome with untreatable insomnia, migranes, and debilitating fatigue. I used to run marathons and now can only walk my dog. Are there any studies on LDN and CFS (not fibromalgia - as they are related but different). Has anyone tried NLD for Chronic Farigue Syndrome?
Antwoord van een LDN gebruiker
It has helped so much with my fatigue! So much so I don't hardly get Fatigue at all anymore! I am still tired and in pain but the fatigue has all but gone. I think you should try it - you have nothing to lose and there are people here to support you. I got worse before I got better but nine months on, I wish I had known about it ten years ago...
Ali
Forgot to add - it has REALLY helped me sleep better..
Ali
Hi! Yes, Me!
--------------------------------------------------------------------------------
To: lowdosenaltrexone@yahoogroups.com
From: rdavidoff@hotmail.com
Date: Sat, 18 Sep 2010 18:27:37 +0000
Subject: [lowdosenaltrexone] Any Studies (or anyone) using LDN and Chronic Fatigue Syndrome?
I have Chronic Fatigue Syndrome with untreatable insomnia, migranes, and debilitating fatigue. I used to run marathons and now can only walk my dog. Are there any studies on LDN and CFS (not fibromalgia - as they are related but different). Has anyone tried NLD for Chronic Farigue Syndrome?
Antwoord van een LDN gebruiker
It has helped so much with my fatigue! So much so I don't hardly get Fatigue at all anymore! I am still tired and in pain but the fatigue has all but gone. I think you should try it - you have nothing to lose and there are people here to support you. I got worse before I got better but nine months on, I wish I had known about it ten years ago...
Ali
Forgot to add - it has REALLY helped me sleep better..
Ali
Greta, hoe geraak ik op die yahoo groep van LDN gebruiker ajb?
Wil eens horen hoe zij de eerste fase doorkomen en hoe lang dat het bij hen duurt.
Wil eens horen hoe zij de eerste fase doorkomen en hoe lang dat het bij hen duurt.
http://opstaanmetmecvs.blogspot.com
Het is makkelijker een atoom te splitsen dan een vooroordeel. - Einstein
Be critical and use your own judgement when using this information. - Marlène R.
Het is makkelijker een atoom te splitsen dan een vooroordeel. - Einstein
Be critical and use your own judgement when using this information. - Marlène R.
Hier registreren
https://edit.yahoo.com/registration?.in ... 1600118787
Dit betekent wel dat je iedere nacht zo tussen de 5 en de 20 mails binnenkrijgt van mensen die opmerkingen of vragen over LDn hebben
Veel leeswerk dus
Maar je kunt ook je vragen op het LDN forum van Brenda stellen
http://ldn.proboards.com/index.cgi
https://edit.yahoo.com/registration?.in ... 1600118787
Dit betekent wel dat je iedere nacht zo tussen de 5 en de 20 mails binnenkrijgt van mensen die opmerkingen of vragen over LDn hebben
Veel leeswerk dus
Maar je kunt ook je vragen op het LDN forum van Brenda stellen
http://ldn.proboards.com/index.cgi
Een heel leesbare site over LDN:
http://www.ldnscience.org/
Deze website kan je aan je arts doorgeven indien je overweegt om LDN te proberen. Het is geschreven door wetenschappers en bevat alle informatie die je nodig hebt.
http://www.ldnscience.org/
Deze website kan je aan je arts doorgeven indien je overweegt om LDN te proberen. Het is geschreven door wetenschappers en bevat alle informatie die je nodig hebt.
http://opstaanmetmecvs.blogspot.com
Het is makkelijker een atoom te splitsen dan een vooroordeel. - Einstein
Be critical and use your own judgement when using this information. - Marlène R.
Het is makkelijker een atoom te splitsen dan een vooroordeel. - Einstein
Be critical and use your own judgement when using this information. - Marlène R.
iemand van het MS forum heeft haar neuroloog kunnen overhalen om een recept te schrijven met dit boek
http://www.ldnresearchtrustfiles.co.uk/docs/eBook.pdf
http://www.ldnresearchtrustfiles.co.uk/docs/eBook.pdf
Beste LDN experts/kenners/gebruikers/fans 
Kan iemand mij mss vertellen of LDN evt. ook zou kunnen helpen bij chronische (zenuw)pijn?
Ik vraag dit niet mbt mijzelf, maar voor mijn moeder.
Zij heeft na een operatie aan haar ruggenwervels zo'n 10 jaar geleden, waarbij zenuwen beschadigd zijn geraakt, chronische pijnklachten, in dien mate dat ze steeds slechter kan lopen, en fuctioneren, slecht slaapt en dus altijd pijn heeft. Omdat zij steeds meer afhankelijk is van zware medicijnen (Lyrica), zou ik het fijn vinden als er mss een alternatief voor haar zou zijn, die haar weer enigszins kan laten functioneren. Dit natuurlijk ook uit eigen belang, aangezien ik tegenwoordig weer aardig afhankelijk van moeders aan het worden ben, en dat op mijn leefdtijd
Zodoende vroeg ik mij af of LDN een optie zou kunnen zijn. Ik wil me eerst er goed in verdiepen voor ik het haar evt. kan voorstellen, ik heb hier nog niet zoveel over LDN en pijn teruggevonden.
Thanks ladies!
Kan iemand mij mss vertellen of LDN evt. ook zou kunnen helpen bij chronische (zenuw)pijn?
Ik vraag dit niet mbt mijzelf, maar voor mijn moeder.
Zij heeft na een operatie aan haar ruggenwervels zo'n 10 jaar geleden, waarbij zenuwen beschadigd zijn geraakt, chronische pijnklachten, in dien mate dat ze steeds slechter kan lopen, en fuctioneren, slecht slaapt en dus altijd pijn heeft. Omdat zij steeds meer afhankelijk is van zware medicijnen (Lyrica), zou ik het fijn vinden als er mss een alternatief voor haar zou zijn, die haar weer enigszins kan laten functioneren. Dit natuurlijk ook uit eigen belang, aangezien ik tegenwoordig weer aardig afhankelijk van moeders aan het worden ben, en dat op mijn leefdtijd
Zodoende vroeg ik mij af of LDN een optie zou kunnen zijn. Ik wil me eerst er goed in verdiepen voor ik het haar evt. kan voorstellen, ik heb hier nog niet zoveel over LDN en pijn teruggevonden.
Thanks ladies!
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words
And never stops at all...
(Emily Dickinson)
That perches in the soul,
And sings the tune without the words
And never stops at all...
(Emily Dickinson)
Veel MS patienten heben zenuwpijn en daar schijnt het mee te kunnen helpen
Eigenlijk is dat waar ik ook op hoop want ik heb ook zenuwpijn en heb daar al van alles voor geprobeerd, ook Lyrica
Als je kijkt op de site van het behandelcentrum voor neuropatische pijn in Soest zie je dat ze oa werken met LDN
http://www.neuropathie.nu/index.php?sea ... ch&Itemid=
Misschien een idee om contact met ze op te nemen?
Op een Belgisch forum heeft een medewerker van dit behandelcentrum een reactie achtergelaten over LDN en pijn.
Dat bericht kun je lezen via deze link: (bericht van 1 augustus)
http://forum.cibliga.be/read.php?8,67393
Verder kun je mischien zelf even googlen met "neuropathic pain and low dose Naltrexone"
Eigenlijk is dat waar ik ook op hoop want ik heb ook zenuwpijn en heb daar al van alles voor geprobeerd, ook Lyrica
Als je kijkt op de site van het behandelcentrum voor neuropatische pijn in Soest zie je dat ze oa werken met LDN
http://www.neuropathie.nu/index.php?sea ... ch&Itemid=
Misschien een idee om contact met ze op te nemen?
Op een Belgisch forum heeft een medewerker van dit behandelcentrum een reactie achtergelaten over LDN en pijn.
Dat bericht kun je lezen via deze link: (bericht van 1 augustus)
http://forum.cibliga.be/read.php?8,67393
Verder kun je mischien zelf even googlen met "neuropathic pain and low dose Naltrexone"
Laatst gewijzigd door greta op 25 sep 2010, 08:57, 1 keer totaal gewijzigd.
Nog een site;
http://painsandiego.com/2010/03/09/low- ... ans-story/
http://painsandiego.com/2010/03/09/low- ... ans-story/
LDN kan zeker helpen voor autisme, vaak dan in combinatie met een dieet
Specialisten daarin zijn denk ik de mensen van deze website;
http://www.de-poort.be/
Specialisten daarin zijn denk ik de mensen van deze website;
http://www.de-poort.be/