Een fantastische brief aan de koning van een 17 jarige Noorse jongen met ME medeondertekend door 58 ander kinderen/jongeren.
Een aanrader!
Stuk uit de brief:
Is Norway really the best country in the world to live in for everyone?
Living with M.E. is a terrible situation by itself, but that’s not why I’m writing to you. I write because especially children with M.E. and their parents today are terribly distrusted and misjudged
M.E. is a very severe disease that affects the entire body, but unfortunately it’s cause has not yet been found. The only thing that helps is to have peace, caring people and symptom-relieving drugs. Yet, today it is regarded by CPS that the disease is caused by over-protection by the mother. Yes, hard to believe, mom, who always takes the right considerations and tends to us when we are at our worst, and that is not an easy task…
We in our family have so far been through two CPS cases and both have fortunately been closed without action. Our mom is a doctor and this might have been of help, but what a burden this has been to all of us.. It is hard to fight against people who don’t understand and only have faith in child protection proceedings and care orders.
(This was as far as I got when I started to write a letter to You two years ago. Since then I gradually have become worse, and I have understood that there are many other children and young people with M.E. who are struggling with the same problems as I am. So now I want to continue on the letter and hope I manage to finish it this time.)
Ook indrukwekkend het rijtje uitspraken van de 58 kinderen onderaan de brief.
Goed geschreven ook. Ze hebben dit document overhandigd aan de koning met foto's van de kinderen erbij.