En blijkt: vooral ook de onzichtbare klachten, depressie en pijn, vermoeidheid, dragen bij aan het leed (en hulpmiddelen). Met een aanbeveling aan de verpleging om daar rekening mee te houden.
Wie weet, komt er ooit nog eens compassie ook met onze "onzichtbare" klachten.
(Maar ja, wat is onzichtbaar nu precies? Zoals we in een ander topic ook bespraken, voor huisdieren, kinderen én sherpa's is onze aandoening duidelijk zichtbaar, merkbaar, ruikbaar, hoorbaar, voelbaar én invoelbaar.)
Journal of Neuroscience Nursing
April 2008 - Volume 40 - Issue 2
Invisible and Visible Symptoms of Multiple Sclerosis: Which Are More Predictive of Health Distress?
White, Carmel Parker; White, Mark B.; Russell, Candyce
The purpose of this study was to examine whether it is the invisible or the visible symptoms or signs of multiple sclerosis (MS) that are associated with greater health distress. Visible symptoms include the use of assistive devices, problems with balance, and speech difficulties, while invisible symptoms include fatigue, pain, depression, and anxiety. In a sample of 145 adults with MS, participants reported on these symptoms and their current level of self‐reported health distress. ....
The invisible symptoms of pain and depression were the most significant predictors of distress. For a subset of the sample that had had MS for more than 11 years, pain and depression continued to be important predictors, but assistive‐device use and fatigue were also important. Nurses should be aware that invisible symptoms may be more troubling to patients than visible symptoms and should ensure that adequate screening and treatment are provided for those with MS.
(ben niet te moe maar gewoon te lui om naar topic te zoeken)