iacfsme congres 22-25 september ottawa

[poppetje]

Binnenkort iacfsme conference in ottawa.

Hieronder de agenda.

Translating Evidence into Practice
September 22-25, 2011 • Ottawa, Ontario, Canada

Agenda
September 22, 2011

Professional Workshops for Physicians and Healthcare Professionals
Morning Session: 9:00 am- 12:00 pm

Workshop 1
How to Apply for Grants

Dennis F. Mangan, Ph.D.
Chair, Trans-NIH ME/CFS Research Working Group, Office of Research on Women’s Health, U.S. National Institutes of Health
Cheryl L. McDonald, M.D.
Medical Officer, National Heart, Lung and Blood Institute, U.S. National Institutes of Health

Workshop 2
Treating Sleep, Pain and Fatigue in ME/ CFS Patients
Two experienced clinicians will discuss current issues in the management of PWCs (Persons with CFS or FM). Using a combination of brief lectures and actual cases, Drs. Bateman and Lapp hope to stimulate engaging discussions about the practical management of sleep, pain, fatigue, orthostatic problems, maladaptive behaviors, and 'whatever.' Attendees are encouraged to bring their questions to the workshop."
* This workshop will be repeated in the afternoon session

Charles W. Lapp, M.D.
Associate Clinical Professor, Duke University Medical Center, Charlotte, NC
Medical Director, Hunter-Hopkins Center, Charlotte, NC
Lucinda Bateman, M.D.
Adjunct Clinical Faculty, Departments of Anesthesiology, Family & Preventive Medicine, and Internal Medicine, University of Utah, Salt Lake City, UT
Director, Fatigue Consultation Clinic, Salt Lake City, UT

Workshop 3
Pediatrics and CFS/ME

Rosamund Vallings, MNZM, MB BS
Board Member, IACFS/ME
Family Physician, Howick Health and Medical Clinic, Auckland, New Zealand

Teruhisa Miike, M.D, Ph.D.
Board Member, IACFSME
Chief, Hyogo Children’s Sleep and Development Medical Research Center, Hyogo, Japan

Workshop 4
Fibromyalgia Theory and Practice

Daniel J. Clauw, M.D.
Professor of Anesthesiology, University of Michigan, Ann Arbor, MI

12:00 pm - 1:30 pm
Lunch Break/Visit Exhibits
Note: Lunch is Self Pay from hotel and local restaurants

Afternoon Session: 1:30 pm – 4:30 pm


Workshop 5
Behavioral Assessment and Treatment of ME/CFS
In this introductory workshop on CFS and FM, participants will learn about practical methods of behavioral assessment and individualized treatment strategies. Our approach consists of self-management focused interventions and non-pharmacologic strategies for clinicians that can offer realistic hope for improvement in these patients. This workshop will benefit clinicians who work with CFS and FM patients.

Fred Friedberg, Ph.D.
President, IACFS/ME
Research Associate Professor, Stonybrook University, Stonybrook, NY

Leonard Jason, Ph.D.
Professor, DePaul University, Chicago, IL

Workshop 6
Exercise Intolerance: Guide to Management and Treatment
This workshop will provide an overview of exercise intolerance and the management of post-exertional symptoms in CFS/ME. A review of assessment tools for measuring physiological responses during exercise will be included, and case studies examining both successes and common failures of persons with CFS/ME will be presented. Given the problem of exercise intolerance in CFS/ME, the workshop will conclude with a practical model that a clinician can use to safely and successfully implement activity management strategies.

Staci R. Stevens, M.A.
Vice President, IACFS/ME
Founding Executive Director, Fatigue Lab, University of the Pacific, Stockton, CA

Christopher R. Snell, Ph.D.
Professor, Department of Sport Sciences, University of the Pacific, Stockton, CA

J. Mark VanNess, Ph.D.
Associate Professor, Department of Sport Sciences, University of the Pacific, Stockton, CA
Adjunct Professor, Department of Bioengineering, University of the Pacific
Adjunct Instructor, Department of Biology, University of the Pacific

Brian D. Moore, Ph.D., ATC
Assistant Professor, Sport Sciences Dept, University of the Pacific, Stockton, CA

Workshop 7
Fibromyalgia Assessment and Treatment
Chronic widespread pain (CWP) is associated with many somatic symptoms, including fatigue, anxiety, depressed mood, and insomnia. Patients at the extreme end of the CWP spectrum have been labeled with fibromyalgia (FM). These patients show signs of abnormal pain processing including increased central pain sensitivity and dysfunctional endogenous pain modulation. During this workshop mechanism based assessments and therapies of FM will be discussed

Roland Staud, M.D.
Professor, University of Florida, Gainsville, FL

Workshop 8
Treating Sleep, Pain and Fatigue in ME/ CFS Patients
Two experienced clinicians will discuss current issues in the management of PWCs (Persons with CFS or FM). Using a combination of brief lectures and actual cases, Drs. Bateman and Lapp hope to stimulate engaging discussions about the practical management of sleep, pain, fatigue, orthostatic problems, maladaptive behaviors, and 'whatever.' Attendees are encouraged to bring their questions to the workshop.

Charles W. Lapp, M.D.
Associate Clinical Professor, Duke University Medical Center, Charlotte, NC
Medical Director, Hunter-Hopkins Center, Charlotte, NC

Lucinda Bateman, M.D.
Adjunct Clinical Faculty, Departments of Anesthesiology, Family & Preventive Medicine, and Internal Medicine, University of Utah, Salt Lake City, UT
Director, Fatigue Consultation Clinic, Salt Lake City, UT
September 22-25, 2011

General Session Agenda-Friday, September 23rd

8:30 am - 8:45 am
Welcome and Introduction
Fred Friedberg, Ph.D.
President, IACFS/ME

8:45 am - 9:15 am
Plenary Session: Gammaretroviruses of Mice and Their Links to Prostate Cancer and CFS/ME
Christine Kozak, Ph.D.

Paper Sessions following all the papers, the panel members will field questions written on cards by the audience and given to the chair as time permits.

9:15 am – 10:30 am
Session: Virology Research
Session Chair: Jose Montoya, M.D.

Blood XMRV Scientific Research Working Group: Latest Findings
!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! (is dit de BWG???)
Graham Simmons, Ph.D.

Detection Of Anti-XMRV Antibodies In Serum of CFS Patients and Healthy Blood Donors in Belgium
Kenny De Meirleir, M.D.

Detection of MLV-like Gag Sequences in Blood and Cell Lines Incubated With Plasma From CFS Patients and Controls
Maureen Hanson, Ph.D.

Chronic Fatigue, Nonrestorative sleep, Musculoskeletal Pain, and Depression in a Disabled Cohort of Survivors of Acute SARS Viral Disease
Harvey Moldofsky, M.D., Dip.Psych., FRCPC, FAPA

10:30 am – 10:45 am
Break / Visit Exhibits

10:45 am - 11:45 am
Session: Virology Research and Review
Session Chair: Jose Montoya, M.D.

Role of the Immune Response in CFS
Jose Montoya, M.D.

The Case FOR Human Gamma Retroviruses (HGRV) in CFS/ME
Judy Mikovits, Ph.D.

The Case AGAINST Human Gamma Retroviruses (HGRV) in CFS/ME
John Coffin, Ph.D.

11:45 am – 12:30 pm
Session: Treatment Advances
Chair: Eleanor Stein, M.D.
Health/Performance and Response Status of XMRV/pMRV
Antibody Positive vs. Negative Chronic Fatigue
Syndrome (CFS) Subjects in a Phase III Clinical Trial
David R. Strayer, M.D.

Rifampin Augments the Effects of
Oxymatrine/Equilibrant (oxm/equi) In Patients with
Myalgic Encephalomyelitis/CFS
John K. Chia, M.D.

Brief Self- Management of UCF/CFS in Primary Care: A
Randomized Trial
Fred Friedberg, Ph.D.

12:30 pm - 2:00 pm
Lunch Break/Visit Exhibitors
Note: Lunch is Self Pay from hotel and local restaurants

2:00 pm – 3:00 pm
Session: Fibromyalgia: Are Tender Points Necessary? A Debate
Chair: Lucinda Bateman, M.D.

Tender Points are Important
Roland Staud, M.D.

Tender Points are Unnecessary
Daniel J. Clauw, M.D.

3:00 pm – 3:30 pm
Break / Visit Exhibits

3:30 pm - 5:30 pm
Session: Diagnosing CFS/ME; Difficult Clinical Cases
Session Chair: Nancy Klimas, M.D.
Case Presentations by: Charles Lapp, M.D., Lucinda
Bateman, MD, Rosamund Vallings, MNZM, MB BS, Derek
Enlander, M.D.

5:30 pm - 6:15 pm
Visit Poster Presentations / Exhibits

6:15 pm - 7:15 pm
Standardizing Data Collection in CFS/ME CASA Project
(collection, aggregation, storage and analyses)
Non CME Session
Session Co-Chairs: Elizabeth Unger, M.D., Ph.D. &
Dennis Mangan, Ph.D.
Fred Friedberg, Ph.D., Leonard Jason, Ph.D., Nancy
Klimas, M.D., Anthony Komaroff, M.D.

SATURDAY AGENDA

8:00 am – 9:30 am
Session: Case Definitions for Research and Practice
Chair: Kenneth J. Friedman, PhD

The New International Consensus Criteria for ME: Content
and Context
Bruce M. Carruthers, M.D.

Contrasting Case Definitions
Leonard Jason, Ph.D.

Data Mining
Leonard Jason, Ph.D.

Pathways to Pathogenesis: Standardized Measures of CFS/ME Illness Domains
Elizabeth R.Unger, M.D., Ph.D.

9:30 am – 10:30 am
Session: Identifying Abnormalities in CFS/ME: The Importance of Exercise Challenge
Chair Staci R. Stevens, M.A.

Exercise Testing to Quantify Effects of Fatigue on
Functional Capacity in Patients With CFS
Betsy A. Keller, Ph.D.

The Importance of Exercise Challenge
Christopher Snell, Ph.D.

10:30 am - 11:00 am Break/Visit Exhibits

11:00 am – 12:15 pm
Session 9: The Latest Research in Immunology
Chair: Nancy Klimas, M.D.

Natural Killer Cell Number and Function in a Prospective
Cohort of Adolescents with Chronic Fatigue Syndrome
and Controls Following Mononucleosis
Benjamin Katz, M.D.

Disparities In Innate and Adaptive Immune Cell Activities
in Chronic Fatigue Syndrome
Ekua W. Brenu, PhD candidate

Longitudinal Assessment of Adaptive Immune Regulation
in Chronic Fatigue Syndrome
Ekua W. Brenu, PhD candidate

Promoter DNA Methylation and Expression of Perforin in
CFS and Controls
Virginia R. Falkenberg, Ph.D.

12:15 pm – 1:30 pm
Lunch Break/Visit Exhibits
Note: Lunch is Self Pay from hotel and local restaurants.

12:30 pm – 1:15 pm
Breakout Session: Mainstreaming ME/CFS Researchers
and Healthcare Providers into Our Peer Communities
Chair: Kenneth J. Friedman, Ph.D . Non CME Session


1:30 pm – 2:30 pm
Session: New Developments in Pediatric ME/CFS
Chair: Teruhisa Miike, M.D, Ph.D.

Linking Lymphocyte Metabolites with Clinical Course in Post-Infectious Fatigue
Gordon Broderick, Ph.D.

A Trial for Prevention of CCFS Onset from The View Point of Sleep Issue
Terusha Miike, M.D., Ph.D.

Therapeutic Outcome by Two-months Intensive Sleep-
Wake Circadian Rhythm Treatments in
Japanese Children and Adolescents with Chronic Fatigue
Seiki Tajima, M.D.

What is the Natural History of Chronic Fatigue Syndrome in Young People?
Katherine S. Rowe, MBBS, M.D., FRACP

2:30 pm - 3:00 pm
Break / Visit Exhibits

3:00 pm – 4:00 pm
Session: New Developments in Epidemiology
Chair: Kenneth J. Friedman, Ph.D .

Natural History
Leonard Jason, Ph.D.

CFS Knowledge And Illness Management Behavior Among
U.S. Healthcare Providers and The Public
Elizabeth Unger, M.D., Ph.D.

Profile of the Patient with Chronic Fatigue Syndrome; Experience with a Population-Based Registry
Jose Alegre, M.D.

4:00 pm - 5:00 pm
Visit Poster Presentations / Exhibits

5:00 pm - 6:00 pm
IACFS/ME Membership Business Meeting

6:00 pm – 7:00 pm
IACFS/ME Social/Cocktails Hour

7:00 pm - 8:00 pm
IACFS/ME Banquet Dinner

8:00 pm – 9:00 pm
Awards Presentation & Banquet Keynote
Ten Important Facts Derived from M.E./CFS History and That Can Improve M.E./CFS Research
Byron M. Hyde M.D.

SUNDAY AGENDA

8:30 am - 10:00 am
Session 12: Research Developments in Genomics and Genetics
Chair: Christine Kozak, Ph.D.

Expression Patterns of miRNAs in Lymphocytes In Patients
with Chronic Fatigue Syndrome
Ekua W. Brenu, PhD candidate

Pathway-Focused Genetic Evaluation of Immune and
Inflammation Related Genes in CFS
Mangalathu S. Rajeevan, Ph.D.

Gene Expression Of Sensory Ion Channels, Adrenegic
Receptors and Cytokines: Potential Biomarkers for CFS
and Fibromyalgia
Lucinda Bateman, M.D.

Gene-Exposure Interactions In The Etiology Of Gulf War
Illness: Evidence Of Increased Vulnerability to
Neurotoxicants in Identifiable Veteran Subgroups
Lea Steele, Ph.D.

Comparing Gene Expression Patterns in CFS and GWI Using the Kerr ME/CFS Platform
Lina Garcia, M.D.

10:00 am – 10:15 am
Break

10:15 am – 11:45 am
Session: Advances in Brain and Neuroendocrine Functioning
Chair: Andrew H. Miller, M.D.

Regional Grey and White Matter Volumetric Changes in
Chronic Fatigue Syndrome (Myalgic Encephalomyelitis):A
Voxel-Based Morphometry 3T MRI Study
I. H. Treasaden, M.B., B.S., LRCP, MRCS, FRCPsych, LLM

Evidence For Reduced Aldosterone in Persons with Chronic Fatigue Syndrome
Roumiana S. Boneva, M.D., Ph.D.

Interaction of Self-And Illness-Related Cognitive Processing In The Right Anterior Insula of CFS Patients: An fMRI Study
Andrew H. Miller, M.D.

Decreased Basal Ganglia Activation in CFS Subjects is
Associated With Increased Fatigue
Andrew H. Miller, M.D.

Assessment of Regional Cerebral Blood Flow in CFS Using Arterial Spin Labeling MRI
Jonathan P. Dyke, Ph.D.

11:45 am – 1:00 pm
Lunch / Visit Exhibits
Networking Lunch - Offering an opportunity for clinicians to network and talk about assessment and treatment issues.

1:00 pm – 2:00 pm
Session: IACFS/ME Clinical Practice Manual: Developing A New Primer
Guidelines Panel
Fred Friedberg, Ph.D., Rosemary Underhill, M.D., Rosamund Vallings, MNZM, MB BS, Alan Gurwitt, M.D.
Leonard A. Jason, Ph.D., Lucinda Bateman, M.D., Kenneth Friedman, Ph.D.

2:00 pm – 2:30 pm
Summary of the Conference
Anthony L. Komaroff, M.D.

2:30 pm
Conference Concludes

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Wat hierboven staat is de professional agenda. Er is ook een dag een patient agenda

Patient Agenda

September 22, 2011
AGENDA


9:30 am – 9:40 am
Welcome & Introduction
Fred Friedberg, Ph.D.
President, IACFS/ME,
Research Associate Professor , Stony Brook University, Stony Brook, NY

9:40 am – 10:00 am
How I Help CFS/ME Patients in Canada
Byron Hyde, M.D.
Founder and Chairperson, Nightingale Research Foundation, Private Practice, Ottawa

10:00 am - 10:20 am
New Developments in Possible Causes of ME/CFS
Anthony L. Komaroff, M.D.
Simcox-Clifford-Higby Professor of Medicine, Harvard Medical School, Boston, MA
Senior Physician, Brigham & Women’s Hospital, Boston, MA
Editor-in-Chief and Publisher , Harvard Health Publications Division, Harvard Medical School

10:20 am – 11:00 am
What Helps People Cope with ME/CFS
Fred Friedberg, Ph.D.
President, IACFS/ME
Research Associate Professor , Stony Brook University, Stony Brook, NY
Leonard A. Jason, Ph.D.
Professor , DePaul University, Chicago, IL

11:00 am - 11:20 pm
Break

11:20 am - 12:00 pm
Fibromyalgia: Current Status
Roland Staud, M.D.
Professor , University of Florida, Gainsville, FL

12:00 pm – 1:30 pm
Lunch Break/ Visit Exhibits

12:15 pm – 1:15 pm
Breakout Session: For parents of children with ME/CFS
Rosamund Vallings, MNZM, MB BS
Secretary, IACFS/ME
Family Physician , Howick Health and Medical Clinic, Auckland, New Zealand
Teruhisa Miike, M.D, Ph.D.
Board Member, IACFSME
Chief, Hyogo Children’s Sleep and Development Medical Research Center, Hyogo, Japan

1:30 pm - 2:00 pm
Legal Aspects of Disability
Hugh R. Scher
Barrister & Solicitor, Toronto, Canada

2:00 pm - 2:20 pm
Latest Research on the Pathophysiology of ME/CFS
Nancy Klimas, M.D.
Immediate Past President, IACFS/ME
Professor of Medicine, Microbiology, Immunology and Psychology , University of Miami, Miller School of Medicine and Miami VA Medical Center

2:20 pm - 2:40 pm
Disease and Discovery: What Have We Learned?
Annette Whittemore
Founder & President , Whittemore Peterson Institute for Neuro-Immune Disease, Reno, NV

2:40 pm – 3:00 pm
Effective Management of Activity Intolerance
Staci R. Stevens, M.A .
Vice President, IACFS/ME
Founding Executive Director , Fatigue Lab, University of the Pacific, Stockton, CA

3:00 pm - 3:30pm
Break

3:30 pm – 3:50 pm
Tools to Stop Crashing, Start Pacing and Planning Your Health
Alison Bested, M.D.
Haematological Pathologist, Medical Specialist Liaison, Environmental health Clinic, Women’s College Hopsital, Lecturer, Community and Family Medicine Faculty of Medicine, University of Toronto

3:50 pm - 4:10 pm
Differentiating ME/CFS and Fibromyalgia from Psychiatric Disorders
Eleanor Stein, M.D.
Psychiatrist in Private Practice
Clinical Assistant Professor, Dept of Psychiatry, University of Calgary

4:10 pm – 4:30 pm
Advocacy (ME/FM Action Network)
Lydia Neilson
Founder & CEO , National ME/FM Action Network

4:30 pm - 5:30 pm
Panel Question & Answer Session
Panel includes: Fred Friedberg, Ph.D., Byron Hyde, M.D., Anthony Komaroff, M.D., Leonard Jason, Ph.D., Hugh Scher, Rosamund Vallings, MB, BS, Teruhisa Miike, M.D, Ph.D., Roland Staud, M.D., Lydia Neilson, Nancy Klimas, M.D, Annette Whittemore, Eleanor Stein, M.D., Alison Bested, M.D.

5:30 pm –7:00 pm
Reception & Movie Debut “Voices from the Shadows”

[poppetje]

Ik kon zo snel niet zien of er een webcast is, zodat wij het kunnen volgen, ik zal ze even mailtje sturen.

[she]

Hee Poppetje!
dank je!
zou wel fijn zijn als er ook een podcast is

[poppetje]

Wil je volgen wat er gebeurt op het congres (zeker in licht van de recente XMRV onthullingen van de BWG), dit is een journalist die volgens mij live zit te twitteren. DML spreekt momenteel:

http://twitter.com/?lang=en&logged_out=1#!/DeBortgjemte

Hmmm, linkje wil niet werken, omdat hij automatisch maar stukje van de url pakt, je moet hem dus even zelf knippen en plakken in de url balk.

[magnetronnie]

Ik ben erg benieuwd naar het praatje van DML, en nog meer naar die van Hanson:

Detection of MLV-like Gag Sequences in Blood and Cell Lines Incubated With Plasma From CFS Patients and Controls
Maureen Hanson, Ph.D.

Volgens mij is dat de studie van Dr. Bell en dat zou gaan om een dubbelgeblindeerde studie naar XMRV.. als dat inderdaad dubbelblind is, en ze tonen een verband aan tussen virus en ziekte zoals ze zelf al gezegd hebben, dan zijn we 2 jaar terug in de tijd en staan we weer op nul en kan de hele Blood Working Group studie worden overgedaan waarschijnlijk.
Maar die kans acht ik na gisteren niet zo heel erg groot.

Dank voor de link poppetje!

[magnetronnie]

DeBortgjemte Jørgen Jelstad
#MEottawa Maureen Hanson: Even though the XMRV sequences may be wrong, there still may be a virus in these patients that we need to identify

Helaas dus? ook geen XMRV in de Bell/Hanson studie.
Dan kunnen we er wel vanuit gaan dat ook Lipkin over een paar maanden niet met spannende dingen gaat komen.

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Ook deze twitteraar is te volgen:
http://twitter.com/?lang=en&logged_out=1#!/sciencecohen

voor live tweetverslag van het congres !

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Bizarre opmerking DML, getweet door Jon Cohen:

When De Meirleir was asked whether his data are valid, he said "I'm not going to say yes or no."

[magnetronnie]

Erg vreemd inderdaad, of bedoelt ie dat na gisteren alles opnieuw moet worden bekeken?

[poppetje]

Montoya spreekt nu:

Montoya: Most likely it is the immune response against them (pathogens) that is responsible for the patients' symptoms.

Montoya: Most, if not all, the pathogens that have been associated with the onset of CFS are intracellular.

getweet door: http://twitter.com/?lang=en&logged_out=1#!/DeBortgjemte

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tweet van: sciencecohen Jon Cohen

At #IACFS/ME meeting, Judy Mikovits shows data that "contaminated" #XMRV samples from Lombardi et al. have virus that's not XMRV

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Coffin: XMRV vs MLV. Although some have taken these observations to support one another, they are distinct, unrelated phenomena.

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tweet Jon Cohen:

Coffin says #XMRV and #CFS was a 3 legged stool: Antibodies, PCR and infectious virus. He didn't say but showed that none of legs now exist

[poppetje]

Tweet:

Judy Mikovits thinks there may be other types of "Human Gammaretroviruses" than XMRV in patients.